Meet Carol
This interview comes from our team at KMD in the Netherlands and features Carol. Carol is living with ALS and wanted to share his experience with others. Since starting to use Grid Pad in 2024, AAC has become an essential part of his daily life, supporting communication, independence, and staying connected with others. In January 2024, I developed vague symptoms that led to a diagnosis of ALS in May. By August, I needed a wheelchair, and speaking had become difficult. I started using Grid in September, and by October I could no longer speak. I can’t communicate without Grid — it’s how I speak to the people around me, and how I stay in touch online through email and WhatsApp. I use it to browse the internet, read the newspaper, look things up, and watch TV. I can communicate without relying solely on “yes” and “no” – Grid gives me a lot of freedom. You can’t react quickly during matches, unfortunately, but I type comments with my eyes that my assistant shares with the team. I also use Grid to talk before the game and at halftime. For one-on-one coaching, I rely on short, prepared phrases. The keyboard – it allows me to talk with my family. I can only communicate outside when the Grid Pad is mounted to the electric wheelchair, so having that setup is absolutely essential for me. Start as early as possible. Practice, particularly if you have the bulbar form of ALS, as there will most likely come a time when you can no longer speak. Then, Grid becomes your gateway to communication.
Can you tell us a little about yourself and your journey with ALS? How did you start using Grid Pad?
Since January 2025, I’ve also needed a feeding tube, as eating and drinking are no longer possible. I’ve been using night ventilation since February to help manage carbon dioxide levels, so Grid has become essential for communication. 
How has Grid impacted your daily life and independence?
How do you use your Grid Pad while coaching football?
What are some of the most useful features of Grid Pad for you, especially when spending time with your family?
How does your Grid Pad support your independence with your new powered wheelchair?
What advice would you give to others with ALS who are new to AAC or considering it?
